Ethical Debates and Practices Across Disciplines and Continents
The first section looks at professional practice; the second foregrounds children’s and young people’s voices and is especially concerned with children and young people as co-researchers. Subjects addressed within the text include sex education, health education, custodial care, confidentiality and gaining consent, ethical issues around ICT and researching with vulnerable populations.
The book is intended for both scholars and practitioners. It places examples in clearly articulated theoretical frameworks as well as considering professional principles and practice.
Liz Webster and Pat Broadhead 11 Their life, their choice: Ethical challenges for supporting children and young people in the self-management ofType 1 diabetes 197
Liz Webster and Pat Broadhead 11 Their life, their choice: Ethical challenges for supporting children and young people in the self-management of Type 1 diabetes The ‘Getting Sorted’ programme: Its origins The ‘Getting Sorted’ programme was established in 2006 by Liz Webster to support young people with Type 1 diabetes. Liz is an experienced chil- dren’s nurse who has been working with children with chronic life-limiting conditions for over twenty years. One of her underpinning principles of practice has been to encourage the participation and engagement of young people in their own health-care provision, the ultimate aim being to facili- tate knowledge and empowerment so that young people become better able to self-manage their conditions ef fectively and safely. The inherent challenge here is that the locus of control normally sits with adults – the parents/carers and medical staf f – and any changes to these established practices would require these adults to trust the young people and believe in their ability to self-manage their conditions if they were supported in the right ways by the adults around them. In this chapter, we describe how the self-help workshops (which the young people named ‘Getting Sorted’) and the related research that Liz and her colleagues have engaged in have helped in further developing their own understanding of how competent young people are at self-management. However, we also illustrate the substantial barriers to self-management that remain, as a result of established and unchallenged clinical practices and because of the uncertainties within families around the...
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