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Perspectives on the Person with Dementia and Family Caregiving in Ireland

Suzanne Cahill

This book is all about dementia in Ireland and what has and has not been happening in a country where dementia has been a taboo topic for so long. In particular it examines the dementia landscape since late 2014, following the launch of Ireland’s first National Dementia Strategy. A lot has happened in Ireland since that time but a lot more needs to happen for people to live well with dementia and have their human rights upheld. There are an estimated 55,000 Irish people living with dementia and these figures are set to triple by 2050. Although topics explored in the book,such as obtaining a diagnosis, accessing home care services and moving from home into a nursing home relate to Ireland, they are discussed against the backdrop of policy, practice and research developments in dementia in other parts of the world. In this way the book provides the reader with a wealth of information including research evidence, best practice guidelines and international expertise. The book has been dedicated to Mnánah Éireann, in recognition of the hard physical and emotional work, caregivers,mostly women do behind closed doors. Throughout the book, an appeal is made for more state support to be given to these formal and informal caregivers.

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Notes on Contributors



Professor Suzanne Cahill was born in Dublin and is a graduate of University College Dublin and a post-graduate of Stockholm University and the University of Queensland Australia. Most of her academic career has been spent teaching, researching and campaigning for the rights of people living with dementia and their family caregivers. She is recognized nationally and internationally as a commentator and expert on dementia matters and she has published a large numbers of scientific articles, book chapters and reports on ageing and dementia. She is author of the book titled: ‘Dementia and Human Rights’ and was lead author on the research report- ‘Creating Excellence in Dementia Care’ that underpinned Ireland’s first national Dementia Strategy. She is currently an Adjunct Professor of Social Work and Social Policy at Trinity College Dublin. She also holds an honorary professorship in Dementia Care at the Centre for Economic and Social Research on Dementia in NUI Galway and is an affiliated Professor in Health and Welfare at the Institute of Gerontology in Jönkoping University Sweden.


Kathy Ryan was diagnosed with young-onset Alzheimer’s disease in January 2014 at the age of 53. The pathway she had to this diagnosis and its disclosure was not straightforward. She is the Chairperson of the Irish Dementia Working Group and a member of the Dementia Research Advisory Team, both of which are supported by The Alzheimer Society of Ireland (ASI). Kathy is a strong and powerful self-advocate...

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